Advance care planning and conversations about dying and death

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Advance care planning contacts in hospitals in the north west metropolitan region of Melbourne

Austin Health Advance Care Planning Department

The Advance Care Planning Department within Austin Health delivers patient services, education and training across the organisation and externally. With the support of the Commonwealth Department of Health it also manages Advance Care Planning Australia initiatives.

http://www.austin.org.au/page/449

Northern Health Advance Care Planning

The advance care planning section of the Northern Health website includes information in community languages and links to relevant forms and further information.

http://www.nh.org.au/services/advance-care-planning

Peter MacCallum Cancer Centre (Peter Mac) Advance Care Planning

The advance care planning section of the Peter Mac website provides links to further information, including an Advance Care Planning brochure and forms.

https://www.petermac.org/services/treatment/advance-care-planning

Royal Melbourne Hospital Advance Care Planning

The advance care planning (for health professionals) section of the Royal Melbourne Hospital website provides links to further information.

The page also links to an Advance Care Planning brochure in various languages for patients.

https://www.thermh.org.au/health-professionals/clinical-services/advance-care-planning

St Vincent’s Hospital Melbourne Advance Care Planning

The advance care planning program of St Vincent’s Hospital Melbourne is known as bestCare.

https://svhm.org.au/home/our-services/departments-and-services/a/advance-care-planning

Werribee Mercy Hospital (of Mercy Health) Advance Care Planning

The advance care planning section of Mercy Health’s website provides links to further information, including an Advance Care Planning guide, brochure and forms.

http://www.mercyhealth.com.au/hcmhs/services/a-c/Pages/AdvanceCarePlanning.aspx

Western Health Advance Care Planning

The advance care planning section of Western Health’s website provides links to further information, including an Advance Care Planning brochure and forms.

http://www.westernhealth.org.au/Services/Advance_Care_Planning/Pages/default.aspx

Advance care planning for doctors and General Practitioner (GP) teams

Royal Australian College of General Practitioners (RACGP) Advance Care Planning Position Statement

The RACGP website notes that Advance Care Planning should be incorporated into routine general practice. In addition to the RACGP Position Statement on Advance Care Planning, the RACGP website includes links to further information and resources.

http://www.racgp.org.au/your-practice/business/tools/support/acp/

HealthPathways Melbourne (for GP teams) including advance care planning pathways

HealthPathways Melbourne, an initiative of the Eastern Melbourne Primary Health Network (EMPHN) and North Western Melbourne Primary Health Network (NWMPHN), is an online portal designed to be used at the point of care by GP teams working in the northwest and eastern regions of Melbourne. HealthPathways aims to guide best-practice assessment and management. HealthPathways includes detailed information and links on advance care planning.

https://melbourne.healthpathways.org.au

Advance care planning: resource for doctors and health professionals (DHHS, Victoria)

The Advance care planning: resource for doctors and health professionals is a series of nine documents under the banner of Advance care planning. The topics covered include when and how to have a conversation about advance care planning and how to implement an advance care plan.

https://www2.health.vic.gov.au/about/publications/researchandreports/acp-doctor-resource

Next Steps: advance care training videos for doctors (DHHS, Victoria)

Next Steps is a series of videos designed to assist doctors to communicate with people about advance care planning.

https://www2.health.vic.gov.au/hospitals-and-health-services/patient-care/end-of-life-care/advance-care-planning/acp-resources

Guidance on use of MBS items for advance care planning in General Practice

In 2015, as part of their brief to support GP teams with information about advance care planning, the Decision Assist project produced a three page document with information about the use of MBS items for advance care planning.

https://www.caresearch.com.au/Caresearch/Portals/0/Decision-Assist-Resources/GP%20Ed%20ACP%20Resources/Decision_Assist_ACP_GP_Guidance_MBS_Items_Sep_2015.pdf

Decision Assist Phone Advisory Service for GPs and aged care staff

In addition to a range of advance care planning resources and training for GPs and aged care staff, the Australian Government funded Decision Assist project provides a 24 hr phone advisory service regarding advance care planning (and a separate advisory service via the same phone number for palliative care). Phone 1300 668 908.

https://www.caresearch.com.au/caresearch/tabid/3104/Default.aspx

Decision Assist advance care planning resources for GPs

The Decision Assist project pages (within the Caresearch website) include a section devoted to advance care planning resources for GPs. These inlcude an Advance Care Planning Guide for General Practice; The Advance Care Planning conversation: A 5 Step General Practice Guide; and Frequently Asked Questions for General Practice.

https://www.caresearch.com.au/caresearch/tabid/4122/Default.aspx

Decision Assist advance care planning training for GPs

In addition to a range of advance care planning resources for GPs, the Decision Assist website provides details of advance care planning (and palliative care) education and training available for GPs.

https://www.caresearch.com.au/caresearch/tabid/3621/Default.aspx

Advance: Initiating palliative care and advance care planning training and resources for general practice (GP) nurses

Advance is a free toolkit of screening and assessment tools and a training package, specifically designed to support nurses in Australian general practices to work with general practitioners (GPs) to initiate advance care planning and palliative care in everyday general practice.

The Advance Toolkit consists of six screening and assessment tools and a Guide. Registered and enrolled nurses who are currently working in Australian general practice are eligible to access the resources.

https://www.caresearch.com.au/caresearch/tabid/4031/Default.aspx

My Wishes, My Plan, advanced care planning as part of My Health Record of the Australian Digital Health Agency

The Australian Government’s My Health Record is organised under the banner of the Australian Digital Health Agency. It is a personalised online summary of individuals health information, which people can choose to share with doctors, hospitals and other healthcare providers. It can include information such as: allergies; current conditions and treatments; medicines; pathology reports or diagnostic imaging scans.

Advance care planning documentation can be uploaded to people’s My Health Record.

https://myhealthrecord.gov.au/internet/mhr/publishing.nsf/Content/acp

Advance care planning tools and general information (Victoria and Australia)

Planning and decisions about dying and death (Better Health Channel website)

The Victorian Government’s Better Health Channel website includes a section on planning and decisions about dying and death. This includes information on advance care planning, along with other sections on topics such as: Planning where you want to die; Financial considerations for end of life; and Coming to terms with dying.

https://www.betterhealth.vic.gov.au/servicesandsupport/end-of-life-and-palliative-care-services

Advance care planning section of Department of Health and Human Services (DHHS) website

The advance care planning section of the Victorian Government Department of Health and Human Services (DHHS) includes links to relevant policies and legislation, best practice guides and advice for clinicians.

https://www2.health.vic.gov.au/hospitals-and-health-services/patient-care/end-of-life-care/advance-care-planning

Dying to Talk Discussion Starter on the Dying to Talk website

The Dying to Talk Discussion Starter is a resource on the Dying to Talk website of Palliative Care Australia. The website aims to reach into the community to normalise dying in Australia and to help Australians work out what’s right for them at the end of their lives.

The Dying to Talk Discussion Starter is a guide designed to help people initiate conversations with family and friends. It is organised into five sections: Reflecting; Talking; Reviewing; Follow-up activities; Extra reflection prompts

http://dyingtotalk.org.au/discussion-starter/

MyValues website

MyValues is a set of specially constructed statements designed to help people identify, consider and communicate their wishes about the medical treatment they would want in the later stages of life. The tool is free to use and generates a summary statement for people to keep and use. Published by Barwon Health, MyValues is funded and supported by the Victorian Government Department of Health and Human Services (DHHS).

https://www.myvalues.org.au/

start2talk website (planning ahead, dementia focus)

The start2talk website is designed for people who want to prepare for a time when they cannot make their own decisions due to injury or a condition such as dementia; people with early signs of memory loss or with a diagnosis of dementia; family carers of a person with loss of capacity because of an illness; and health and community care professionals who want to promote planning ahead with the individuals or communities they work with.

http://start2talk.org.au/

ACP Talk website for sensitive religious and cultural advance care planning

This ACP Talk website of Cabrini Health provides informational support for health professionals conducting advance care planning with people from different religious and cultural backgrounds. It aims to support conversations sensitive to the religious and cultural values and beliefs of all Australians.

http://www.acptalk.com.au/

Taking Control of YOUR Health Journey

The Taking Control of YOUR Health Journey booklet was developed as part of a project funded by the Australian Government to increase awareness of advance care planning in the Aboriginal community.

Printed booklets are available from the Advanced Care Planning Department at Austin Health on 03 9496 5660. The booklet can also be accessed free of charge through via Amazon’s Cloudfront service.

https://dr892t1ezw8d7.cloudfront.net/wp-content/uploads/2015/11/Taking-Control-of-Your-Health-Journey.pdf

Taking Care of Dying Time

Aboriginal Community Support Worker Chris Thorne talks about his personal experience with a family member and the value and importance of having an advance care plan in place.

Pop Arthur

This short illustrated book tells the story of Pop Arthur, a man living in a remote community with his family. It follows the journey of Pop Arthur through palliative care and to the end of his life and includes family members’ reflections on Pop Arthur’s life and his decision to stop active treatment and die at home with his family.

The book can be found on the digital publishing platform Issuu.

https://issuu.com/amamood/docs/2012-6-7_poparthur_web

My Wishes, My Plan, advanced care planning as part of My Health Record of the Australian Digital Health Agency

The Australian Government’s My Health Record is organised under the banner of the Australian Digital Health Agency. It is a personalised online summary of individuals health information, which people can choose to share with doctors, hospitals and other healthcare providers. It can include information such as: allergies; current conditions and treatments; medicines; pathology reports or diagnostic imaging scans.

Advance care planning documentation can be uploaded to people’s My Health Record.

https://myhealthrecord.gov.au/internet/mhr/publishing.nsf/Content/acp

Advance Care Planning Australia

Since 2002 Austin Health has worked with other health services to provide training and foster development of advance care planning across Australia. This includes the Advance Care Planning Australia website and associated initiatives.

http://advancecareplanning.org.au/

Palliative Care Victoria 

The Palliative Care Victoria website has links to various sources of information relevant to advance care planning.

Advance care planning for patients and families
https://www.pallcarevic.asn.au/library/for-families-patients/fp-advance-care-planning/

Planning ahead for patients and families
https://www.pallcarevic.asn.au/library/for-families-patients/fp-planning-ahead/

Advance care planning for professionals
https://www.pallcarevic.asn.au/library/for-healthcare-professionals/hp-acp/

Palliative Care Australia 

The Palliative Care Australia website provides a summary of advance care planning and links to further information in each state and territory.

http://palliativecare.org.au/support-and-services/advance-care-planning/

Karuna website resources, including general information sheets

Operating since 1992, Karuna is a Brisbane based service providing in-home palliative care, a grief and bereavement service, a learning and support service and a website and bookshop with resources on a variety of topics. Karuna’s general information sheets are organised under the topics of: The shock of diagnosis; Living with illness; Dying peacefully without regrets; and Information for family and friends.

http://www.karuna.org.au/resources/

Talking to patients about death and dying

This booklet is designed for health practitioners who wish to talk with patients about advance care directives, as well as death and dying. It is available from Palliative Care South Australia.

http://www.pallcare.asn.au/Info-Resources/Articles-and-Documents/PC-Brochures/Talking-to-Patients-2015-Digital-Book-Print

End of life law, including powers of attorney, medical consent and refusal of treatment

Victorian Department of Health and Human Services (DHHS) 

The advance care planning section of the Victorian Government Department of Health and Human Services (DHHS) includes a link to an overview of the legal framework for advance care planning in Victoria and a link to the new Medical Treatment Planning and Decisions Act (2016) which has a default commencement date of 12 March 2018. This act includes updated provisions regarding statutory recognition of advanced care directives.

https://www2.health.vic.gov.au/hospitals-and-health-services/patient-care/end-of-life-care/advance-care-planning

Office of the Public Advocate (OPA) powers of attorney information, plus medical consent and refusal of treatment

The Victorian Office of the Public Advocate is empowered by law to promote and safeguard the rights and interests of people with disability. The OPA website includes a section on powers of attorney, including access to forms and information about the enduring power of attorney (medical treatment).

The website also explains the nature of changes to powers of attorney from 1 September 2015 with the commencement of the Powers of Attorneys Act 2014.

A separate section of OPA website provides information on medical consent, including forms and processes for refusal of medical treatment.

http://www.publicadvocate.vic.gov.au/power-of-attorney

http://www.publicadvocate.vic.gov.au/medical-consent

End of Life Law in Australia website

The End of Life Law in Australia website is published by the Australian Centre for Health Law Research (ACHLR) of the Queensland University of Technology. It is designed to provide health practitioners and the broader community with information about Australian laws relating to death, dying and decision-making at the end of life.

https://end-of-life.qut.edu.au/

Australia - Projects/campaigns promoting conversations about dying and death

Dying to talk website, including Discussion Starters

Dying to Talk is a website of Palliative Care Australia that encourages Australians of all ages and levels of health to talk about dying. Dying to Talk aims to reach into the community to normalise dying in Australia and to help Australians work out what’s right for them at the end of their lives. The website includes stories, a Life in Death art competition and a Dying to Talk Discussion Starter to help people initiate conversations with family and friends. There is also a Aboriginal and Torres Strait Islander Discussion Starter that was developed with support from the Congress of Aboriginal and Torres Strait Islander Nurses and Midwives (CATSINaM).

http://dyingtotalk.org.au/

Conversations: Creating choice in end of life care

Conversations: Creating choice in end of life care is a 64 page report published in 2016 by the Australian Centre for Health Research (ACHR). It provides an eight point ‘Roadmap for Action’ to transform end of life care in Australia by creating choice through conversations. The recommendations are targeted to specific audiences: people; communities; health providers, universities, colleges and training providers; policy makers; employers; media; researchers.

http://www.achr.org.au/conversations-creating-choice-in-end-of-life-care/

Death Over Dinner Down Under

Death Over Dinner (DOD) was originally designed in the USA by Michael Hebb and Angel Grant (see link to TED talk) to encourage people to have conversations about end of life and end of life care at the kitchen table rather than in the Intensive Care Unit. DOD aims to educate people on the value of making decisions about their wishes, and expressing them to their loved ones, by inspiring a series of uplifting and interactive dinners to transform the seemingly difficult conversation about death into an intimate, shared experience. The DOD website provides a range of tools, reading and support materials, as well as tips to get the conversation started. An Australian and New Zealand version of DOD has been established under the name Death Over Dinner Down Under.

http://deathoverdinner.org.au/

The Groundswell Project

The mission of the Groundswell Project is to develop innovative arts and health programs that create cultural change about death and dying, while championing others to do the same. Projects associated with the Groundswell Project include Dying to Know Day and Compassionate Workplace.

http://www.thegroundswellproject.com/

Dying to Know Day

Dying to Know Day (D2Kday) is an initiative of The Groundswell Project that aims to promote death literacy, bringing to life conversations and community actions around death, dying and bereavement. It was inspired the charity Igniting Change (formerly Pilotlight Australia) and their book ‘Dying to Know: Bringing death to life’. D2KDay is officially on August 8th each year, however people are encouraged to host events anytime during August.

http://www.dyingtoknowday.org/

Compassionate Workplace

Compassionate Workplace is an initiative of The Groundswell Project that runs workshops and forums to educate organisations to empower internal social networks of caring people. The goal is to make it easier for people to talk with someone who has a loss – for people to be more courageous and authentic in how they respond to colleagues dealing with a death.

http://www.compassionateworkplace.com.au/

Compassionate Communities Network

Compassionate Communities Network aims to promote and integrate social approaches to dying, death and bereavement in the everyday life of individuals and communities, by:

  • identifying and promoting leading practices in the field of public health and social approaches to dying, death and bereavement and embed these in public policy
  • leading and advocating for and contributing to, palliative care and end-of-life social policy
  • encouraging, establishing and strengthening partnerships that support community capacity building and resilience in issues surrounding dying, death and bereavement
  • furthering research in the field of public health/social approaches to dying, death and bereavement in culturally diverse communities.

http://www.compassionatecommunities.net.au/

Death Cafe

Originating in the UK with a death café in East London in 2011, Death Café describes itself a ‘social franchise’ involving people, often strangers who don’t know each other, gathering together to eat cake, drink tea and discuss death. Death Café’s objective is to “increase awareness of death with a view to helping people make the most of their (finite) lives”. A Death Cafe is a group directed discussion rather than a grief support or counselling session. The Death Café website includes links to death cafes held in Australia and other parts of the world.

http://deathcafe.com/

Human Rooms

Established in 2008 by Visual Artist and Designer Efterpi Soropos, Human Rooms is an immersive experiential concept that aims to assist participants to reduce stress, induce relaxation and meditative states within a peaceful and harmonious environment that is self-directed. Efterpi’s collaborations include Monash Medical Centre Palliative Care Unit and Alzheimer’s Australia Victoria.

http://humanrooms.com/HUMAN_ROOMS_HOME.html

Natural Death Advocacy Network

The Natural Death Advocacy Network (NDAN) describe themselves as a growing Australian network and advocacy partnership of community facilitators, professionals, activists and educators working to enrich the experience of dying and death. Main areas of advocacy include death education, funeral planning, family lead funeral care, natural burial and bereavement care.

http://ndan.com.au/

Natural Death Care Centre

The Natural Death Care Centre is a Byron Bay based non-profit organisation that believes in “living well, dying well and experiencing loss well, whatever that may mean” for different people as part of “a growing movement of people working both locally and globally to create a gentle, satisfying and accepting approach to death, dying and disposal of the human body”. Activities include Deathwalker Training. Natural Death Care Centre Executive Officer Zenith Virago is also known through the 2015 film Zen & The Art of Dying.

http://www.naturaldeathcarecentre.org/

Living with our dead

Living with our Dead is a NSW based project that aims to create “a new language and aesthetics of death and remembrance” by fostering individual and community artistic expression, placing death as a significant part of life. The project encourages “personal and idiosyncratic expressions of how we live with our dead – our people, animals, flora and fauna……and through this, to understand what living with our dead may offer us as individuals and communities”. Activities include an annual picnic among friends at Girrahween Park, Earlwood.

http://livingwithourdead.com/

Asia - Projects/campaigns promoting conversations about dying and death

LIFE Asked Death: Developing Palliative Care in Asia

LIFE ASKED DEATH is a short film that aims to highlight the scale of pain and suffering that needs to be urgently addressed in Asia, and offers insights into the positive outcomes that can be achieved even in resource-limited countries. The documentary brings viewers to Bangladesh, Myanmar and Sri Lanka to witness how the specialist volunteers of the Lien Collaborative for Palliative Care (an initiative of the Lien Foundation and the Asia Pacific Hospice Network) bring palliative care and training to these countries.

http://lifeaskeddeath.com/

LIFE Before Death (International-Asian based)

LIFE Before Death is a multi-award winning film and documentary series released in 2012. It profiles stories from 11 countries about ‘living well and dying better’. LIFE Before Death is a project of the Singapore-based Lien Foundation produced by Melbourne based Moonshine Movies, a division of Moonshine Agency. Lien and Moonshine also collaborated on the 2016 short film LIFE Asked Death: Developing Palliative Care in Asia in partnership with the Asia Pacific Hospice Network.

http://lifebeforedeath.com/movie/about-the-movie/

UK - Projects/campaigns promoting conversations about dying and death

Dying Matters (England and Wales)

Dying Matters is a coalition across England and Wales which aims to help people talk more openly about dying, death and bereavement, and to make plans for the end of life. Dying Matters began in 2009 under the auspice of the National Council for Palliative Care.

http://www.dyingmatters.org/

Good Life Good Death Good Grief (Scotland)

Good Life, Good Death, Good Grief aims to make Scotland a place where there is more openness about death, dying and bereavement so that: People are aware of ways to live with death, dying and bereavement; People feel better equipped to support each other through the difficult times that can come with death, dying and bereavement.

https://www.goodlifedeathgrief.org.uk/

Death Cafe

Originating in the UK with a death café in East London in 2011, Death Café describes itself a ‘social franchise’ involving people, often strangers who don’t know each other, gathering together to eat cake, drink tea and discuss death. Death Café’s objective is to “increase awareness of death with a view to helping people make the most of their (finite) lives”. A Death Cafe is a group directed discussion rather than a grief support or counselling session. The Death Café website includes links to death cafes held in Australia and other parts of the world.

http://deathcafe.com/

Dying for Change (UK)

Dying for Change is a 136 page report published in 2010 by Demos, a UK based organisation that describes itself as ‘Britain’s leading cross-party think-tank’. The report argues for: improvements to existing services: making end of life advance care plans the norm; more training for the medical profession in palliative care; and more greatly integrating the care services provided by the public, private and voluntary sectors. It also suggests: a new infrastructure of home hospices; the creation of a compassionate care benefit; and a properly trained volunteer support network providing palliative care.

https://www.demos.co.uk/project/dying-for-change/

Gold Standards Framework website Advance Care Planning pages

The National Gold Standards Framework (GSF or Gold Standards) Centre in End of Life Care is a UK based not-for-profit Social Enterprise Community Interest Company. GSF’s mission is to “deliver training and support that brings about individual and organisational transformation, enabling a ‘gold standard’ of care for all people nearing the end of life”. The GSF website provides access to a range of resources, including advance care planning information.

http://www.goldstandardsframework.org.uk/advance-care-planning

 

The Natural Death Centre (UK)

Founded in 1991, The Natural Death Centre describes itself as seeking to “inform, empower and inspire the public in all matters relating to death and dying, and in particular to increase awareness of funeral choices outside of the mainstream”. Their online bookshop includes a Natural Death Centre Advance Decision form, along with a Death Plan form and a Funeral Plan form.

http://www.naturaldeath.org.uk/

UK Healthtalk website – living with dying section

The Living with Dying section of the UK Healthtalk website includes personal stories in video format (text format also available) from people living with life-limiting illness, or caring for someone with life-limiting illness. The videos are arranged under various topics, including some which discuss planning ahead and advance care planning.

http://www.healthtalk.org/peoples-experiences/dying-bereavement/living-dying/overview

Conversations for Life

Originating in the UK, with a second base in the USA, Conversations for Life is a proprietary fee for consultation service offering tools for families, professionals and communities to start talking about end of life care.

http://www.conversationsforlife.co.uk/

USA - Projects/campaigns promoting conversations about dying and death

The Conversation Project

Working in collaboration with the Institute for Healthcare Improvement, The Conversation Project is dedicated to helping people talk about their wishes for end-of-life care. Their website includes a Conversation Starter Kit (available in multiple languages), along with a specialist version for children, ‘The Paediatric Starter Kit: having the conversation with your seriously ill child’. Another kit is designed for families and loved ones of people with Alzheimer’s disease or other forms of dementia.

http://theconversationproject.org/

Death Over Dinner

Death Over Dinner (DOD) was originally designed in the USA by Michael Hebb and Angel Grant (see link to Ted talk) to encourage people to have conversations about end of life and end of life care at the kitchen table rather than in the Intensive Care Unit. DOD aims to educate people on the value of making decisions about their wishes, and expressing them to their loved ones, by inspiring a series of uplifting and interactive dinners to transform the seemingly difficult conversation about death into an intimate, shared experience. The DOD website provides a range of tools, reading and support materials, as well as tips to get the conversation started. An Australian and New Zealand version of DOD has been established under the name Death Over Dinner Down Under.

http://deathoverdinner.org/

Five Wishes

Five Wishes is an advance care planning documentation system developed by the USA non-profit Aging with Dignity. The Five Wishes document is a widely used advance directive or living will in America.

https://www.agingwithdignity.org/

Living Life Dying Death: A Guide to Healthy Conversations about Dying and Death to Inspire Healthy Living

Living Life Dying Death is a book written by USA based Jennifer Collins Taylor and published in 2010. The ‘blog’ section of a website using the book name provides access to a free download of the book along with other articles.

http://livinglifedyingdeath.com/blog/

Hello: The Conversation Game for Living and Dying Well (an updated version of the My Gift of Grace card game)

Designed by USA based company Common Practice, ‘Hello: The conversation game for living and dying well’ is an updated version of the My Gift of Grace card game. Questions in the game cover a wide variety of topics about living and dying well, and games can last anywhere from 20 minutes to three hours or more. The game can be played by families, co-workers, teams, strangers, or a mix of any of these. There are no age restrictions or experiences you need to have before you play. The game adjusts itself to the level of comfort of the players and to how long a group wishes to play. The games (new and old versions) are available for purchase.

http://commonpractice.com or  http://mygiftofgrace.com/

The Go Wish card game of the Coda Alliance

Go Wish is a card game developed in 2005-06 by the Coda Alliance. The game is a set of 36 cards, each card with a short statement of things people often cite as being important to them in the last weeks or months of life. To play the game (in ‘solitaire’ mode) the individual sorts the cards and ranks priorities about what’s important to them, and then discusses or explains to a friend or family member why they made the sort the way they did. The instruction sheet for the game gives other ways to play it in pairs or groups. The point of the game is not to create a written list of “what I want,” but to stimulate conversations about what is important and why.

http://www.gowish.org/

The Order of The Good Death

The Order of the Good Death describes itself as “a group of funeral industry professionals, academics, and artists exploring ways to prepare a death phobic culture for their inevitable mortality”.  It was founded in 2011 by Caitlin Doughty, a mortician and writer in the USA. The Order is about making death a part of your life. That means “committing to staring down your death fears – whether it be your own death, the death of those you love, the pain of dying, the afterlife (or lack thereof), grief, corpses, bodily decomposition, or all of the above”.

http://www.orderofthegooddeath.com/